Support Registry Update

Reflections

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Sarah
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It appears the side effects hit a little earlier and harder for round 3, thanks in part to also fighting a cold. Post chemo days 2-4 were no fun, but my body finally agreed with the Daylight Savings reset and as of now is feeling back to a generally good baseline.

I’ve been reflecting on some of the early moments and healthcare team that were a big part of the initial weeks where I underwent so much testing. During some of the procedures, providers started asking if I wanted music on in the background, so I started working my way through some of my favorite Jazz: John Coltrane, Herbie Hancock, Thelonious Monk, Duke Ellington. 

My first MRI was the most difficult thing to date in this entire journey so far because.. claustrophobia. Without hyperbole, I can say it took the most mental energy of anything difficult I can recall in life, including a lot of “type 2 fun” adventures. Climbing up things outside is easy but it’s a different story lying face down Superman style in an enclosed tube for 50 minutes. Despite the jazz playing in the headphones, a patch of lavender under my nose, and a very nice cold room (which helps me), I would not have gotten through the almost hour MRI without a man named Colton who volunteered to stay in the room the entire time holding my hand and talking loudly about the woes of dating in Denver and how he “now apparently has to learn how to do woodworking or skiing to date in Denver”. 

The second MRI was shorter but still hard and an RN named Chelsey held my hand with so much compassion and talked about astrology and auras. I had a total of 4 biopsies. The second one was longer and harder because of the special imaging that was needed and more difficulty with body positioning. When the MD asked if I wanted any background music on I picked John Coltrane. Turns out the entire clinic was blessed with listening to John Coltrane that day when the tech accidentally left the overhead page on next to the speaker. 

It’s a strange thing to encounter so many kind and knowledgeable people in such a crappy circumstance. It brought a lot of perspective, especially as a person in healthcare myself. Feels good to be past the halfway point for chemo! Thanks for the continued support 💜

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Comments

Stephen Howell 3 months ago

🫂♥️🫂♥️

Christi Felabom 3 months ago

Thanks for sharing your journey, Sounds definitely super challenging recently. Continuing to pray and hugs from Illinois.

Kate Catlin 3 months ago

You are so strong. You're incredible. Sending you continued strength from Seattle and so glad you found supportive folks to be in the room <3

Missy Darnell 3 months ago

This update is JUST like you- to focus on the glimmers and positive moments despite all the fear, pain, and ick. You inspire me daily, Bury! So much love to you.

Sharrie Booth 3 months ago

Sounds like round 3 was not the best but yay for being at the halfway mark! Besides taking time to send positive thoughts for you, I'm going to say a silent thank you to Colton and Chelsea for being there for you.

Anne Jeffas 3 months ago

Sarah, it's amazing, the places where you will see God's light and strength coming through to you..especially through others. God bless the hand holders. :-). My Dad must have passed down the claustrophobia to you. I betcha he was right there with his great niece, working hard to keep you calm. We are ALL holding your hand...from afar. We love you, kiddo! Shake off that cold and don't try to push yourself too much. Just take any easy hike and BREATHE. 💗

Dianne Busenbark 3 months ago

Loved reading this Sarah, and love you. Glad you’re feeling back to general baseline💜🤗

Jonda Dramann 3 months ago

Hey dear girl, thank you for sharing this update. Your are so amazing and strong and finding the upside in these uncomfortable situations! We may not be there physically with you yet, God has provided just what you need at the time, a hand to hold for comfort. Please know you have a cheering section, waiting in the wings ready to help. I have another music artist to add to your collection, Earl Klugh and White Water.

Aunt Laura McPherson 3 months ago

For an oldie but goodie try Keith Jarret's Koln Concert (1975) - it got me through several dental surgeries and remains a hugely absorbing and grounding piece. Here it is on YouTube (sorry for the ads at the beginning): https://www.youtube.com/watch. Sending love and hugs - you are over the halfway mark, yes? Aunt Laura

Jess H 3 months ago

Rooting for you Sarah!! Praying for more unexpected friends along the way!

Annie Gordon 3 months ago

Keeping you in our prayers!

Bruce kellman 3 months ago

Your courage and positive attitude are indeed inspiring! It is the cement that hardens the foundation of your spirit - solid, stable and (mostly) unwavering. I admire you now more than I ever did, which is something i didn't think possible... Stay strong and keep up the fight. You have an army of supporters cheering you on as you kick this nastiness's ass

Makeba Greene 3 months ago

I like Colton and Chelsea! So grateful for loving caregivers to hold your hand and bring some levity. Personally I think woodworking is a great date choice.