Support Registry Update

GI Update

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The Weilnhammer Family
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Following initial testing, Camila’s Pediatric Gastroenterologist (GI) has confirmed that she is in significant GI distress. There is an alarming amount of inflammation in her gut that we are being told is rarely seen in children her age. Given the concern and necessity of diagnostic clarity, Camila will once again be going under general anesthesia for a repeat upper endoscopy and colonoscopy. 
 
We share this update with heaviness. This is not the news we wanted or expected. We do know she is in great hands and are eager to identify the root cause of her discomfort. 
 
Camila’s procedure is scheduled for March 21st. Please continue to keep our family in your thoughts. 
 
With love, 
The Weilnhammer Family 

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Comments

Matthew Somers over 1 year ago

I hope they can get to the bottom of GI discomfort for Camila. We will be keeping you all in our thoughts. Anesthesia procedures are never fun but always worth it to get the medical answers/needs addressed. Luckily we are in a great location for talented medical teams.

Mary Reilly over 1 year ago

I am hoping these procedures will provide the answers so Camila can receive the treatment she needs to help with the inflammation. I will be sending thoughts, prayers, meals and whatever else you need so you and Frankie can continue to support Camila. I love the pictures of Camila! 💜

Pat and Tom Bajzek over 1 year ago

While this isn’t happy news, we hope that you can get answers to how to help Camila feel better. Feeling powerless as a parent is a terrible feeling - so we hope you get the answers you need

Heidereilly over 1 year ago

You all are in my thoughts and prayers. We love you guys.

Teresa Kolpak over 1 year ago

I am sure you guys just want answers and I hope you get them. You both are such strong advocates for Camila, she’s so fortunate to have parents like you. Good luck to Camila!

Jim.reilly over 1 year ago

Our prayers are with you guys.

Michael Reilly over 1 year ago

She is in good hands. Saying prayers forb Camila

Megan Reilly over 1 year ago

We will keep you in our thoughts and prayers! Wishing all of the best for Camila and hoping for the answers you all deserve <3 -Megan and Eva

Mary Fran King over 1 year ago

Camilla is so lucky to have wonderful parents to take such great care of her! I’m sure the tests will help determine best treatment solutions. Sending love your way! ❤️

Coleen Reilly over 1 year ago

Praying for answers, healing, and peace You are all in my thoughts

kathy short over 1 year ago

Sending prayers, love and encouragement from the Short family. Frankie and Vanessa, you are amazing parents and so strong for Camila. I hope you get some answers and that Camila gets some relief. 😘

kathy short over 1 year ago

Sending prayers, love and encouragement from the Short family. Frankie and Vanessa, you are amazing parents and so strong for Camila. I hope you get some answers and that Camila gets some relief. 😘