Children like our son and those that have more involved medical complexities can’t afford to be forgotten or told to simply “wait and see” - which is exactly what we were told to do. This is why advocacy matters. 

When our son was released from the hospital he was put on a wait list for Early Intervention- meaning it could have taken months and months for him to be able to see someone who could take him on for Physical and Occupational therapy - therapy that he absolutely needed as soon as possible. I didn’t accept the possibility of not receiving care and so I made countless phone calls which finally got him approved. Behind every child who is getting what they need from the system, is a parent who is fiercely advocating and fighting for the best care possible. 

Every medical breakthrough started because families refused to stop fighting for their children and refused to accept the prognoses as the final word in their children’s healing journey. When parents are willing to speak up and share their stories, document progress, ask the hard questions and keep pushing for more awareness and better options - it opens up the door to more possibilities and opportunities in healthcare.

When it comes to stem cell treatment for brain injuries and neurological conditions, there’s still so much that isn’t widely understood or accepted yet. A lot of families are left trying to figure things out on their own while as we are - deep diving into research articles and limited studies, no insurance coverage, and very few resources. Families like ours can’t wait decades for more answers or FDA approval. We have done our own research and seen extraordinary progress from other families like ours who share their own stories via social media. It’s because of other families’ advocacy that their children received life changing treatment, and in doing so allowing other families like ours to see what is truly possible. 

As we continue fighting for our son and working toward stem cell treatment, we also hope to help bring more awareness and more visibility to these types of treatments for other families walking a similar road 🙏🏻

Thank you to everyone who continues to support our family, pray for our son, share our story and encourage us through all of this. It truly means more than we can put into words 💚